As a breast cancer patient I want to know what to expect next on my journey so that I can prepare myself for the next step.
As a breast cancer patient I would like to know what to expect next on the patient journey. This will help me find guidance , trusted information and be prepared for what's ahead. The current sources of information are numerous, confusing and I don't know what to believe. My wishlist / ideas: 1. I would like to have a curated set of information describing the next steps on my patient journey ; starting from at time of diagnosis ; understanding of disease, available treatment options, impact on daily life and right through the journey. 2. Suggest me and connect me to fellow patients who are on the same point on the journey to share experiences ; advice with each other; for motivation and inspiration; for discussing psychological support and shared experiences. 3. An option to connect to specialists / health care workers to answer my queries on what to expect / procedures. 4. A digital assistant to guide me through my journey with trusted information (a wiki of my health ) would be nice along with connects to a social network of fellow patients . 5. If it could bust medical jargon for breast cancer that would be also nice.
1-Awareness and literacy
Team Composition would benefit from
Web/Mobile App developer, chat developer, UX Expert, Patient interaction / advice experience for breast cancer patients
Wish list / call for resources
"Breast cancer patient journey - reliable information."Uni Spital Basel: is there a typical journey for Breast Cancer Patients?Something like this?https://www.jmir.org/2015/5/e132/#app1https://www.breastcancercourse.org/treatment-timeline/
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