Slack Channel My Data Core


As a chronic patient, I want to be able to collect all my different records in one place so that I can pull them out immediately if needed.


As a chronic patient with still ongoing treatment and diagnosis I  face several problems and stress due to multiple health documents being stored at different specialists' locations. I need to undergo unnecessary and repeated tests because data is not available in due time. Physicians have little time, so they should not waste it to locate important documents. More importantly,  physicians end up missing my full picture to understand my patient situation which causes delays in care decisions and treatment, and further unnecessary pain. Challenge: create just one simple place to store my records in a time-series of significant events. The app (mobile + web) should allow for as simple but as comprehensive as possible searches along the timeline of my patient journey. The system should allow for as many data types and formats as possible (e.g. from written notes to medical transcripts).

Thematic Area

2-Data Interoperability

Patient Champion

Champion S.R. (8) + Champion E.T. (7)

Team Composition would benefit from

Web/Mobile App developer, UX/UI expert, DB specialist,

Wish list / call for resources

 ask stakeholder for sample datatime series patient records,

08.11.2020 12:00

Hackathon finished

25.10.2020 17:46

Team forming

smita_more has joined

24.10.2020 22:16

Team forming

ElaineKanwar has joined

23.10.2020 16:35

Team forming

jayp18 has joined

23.10.2020 12:00

Hackathon started

23.10.2020 11:54

Team forming

daniel_chan has joined

22.10.2020 22:14


Readme fetched from source by giovanni_nisato

22.10.2020 12:10

Project started

Initialized by giovanni_nisato

2. Data interoperability

Patients struggle with the fact that HCPs are not usually updated on their situation, which means they need to explain their story over and over. Data and documents are not shared quickly enough between HCPs, and often patients lose track of their medical reports. Patients would like to have a safe space where they and their doctors can access their data. A common data channel would also help address the current lack of interprofessional collaboration and communication. Furthermore, patients would have the ability to provide supporting documents (reports, prescriptions) in urgent situations.

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