My Companion
Summary
As a breast cancer patient, I want to find help from sources to overcome the hurdles and struggles along the treatment journey so that I can stay on treatment and manage side effects better.
Description
As a breast cancer patient, I want to find help from sources to overcome the hurdles and struggles along the treatment journey so that I can stay on treatment and manage side effects better. A digital companion whom I can interact with to help me stay on will helping to stay on treatment (reminders) help me understand and manage side effects for my treatment , I am able to share my outcomes via conversations and , helping to connect with other people on the network going through similar experiences. It would also be possible to connect to services like nutrition advice , clinical trial recruitment etc. via the companion who could suggest these to me.
Thematic Area
1-Awareness and literacy
Patient Champion
Team Composition would benefit from
Mobile App developer, chat developer, UX Expert, Experience with breast cancer treatment journey and patient conversations. Design of patient reported outcomes surveys
References/Resources
No.2As a breast cancer patient, I want to find help from sources to overcome the hurdles and struggles along the treatment journey so that I can stay on treatment and manage side effects better. A digital companion whom I can interact with to help me stay on will help to stay on treatment (reminders) help me understand and manage side effects for my treatment, I am able to share my outcomes via conversations and, helping to connect with other people on the network going through similar experiences. It would also be possible to connect to services like nutrition advice, clinical trial recruitment etc. via the companion who could suggest these to me.
Wish list / call for resources
Ask Consortia members - for the medical information and PRO . Chatbot development platform / tools / services
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1. Awareness and literacy
Patients think that the general public should be more aware of the risk of acquiring specific diseases (especially cancer). The need to do regular check-ups and screenings, and the benefits of both, should be made known and pushed (e.g. PSA or Pap test screening). In addition, awareness of reference/normal values, and the meaning of these, should be communicated to physicians and patients to align knowledge and medical literacy among the patient, caregiver and HCP communities.
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