As an ALS patient or a family member, I want to make sure that caregivers are alerted in case of critical events. On other hand, I also would welcome a more proactive continuous support to reduce the daily burden of the condition. An automated connection with medical professionals records would help.
As a Type 1 Diabetes patient I want to understand my "full health and activity picture" since it will help me manage my day to day disease with the help of an integrated data picture combining existing data streams (Continuous Glucose Monitor, Diet, Activity, Sleep, Weather, Mood...)
To develop solution that brbings together my various interactions - both objective measures and self reported subjective observations.
As a chronic patient I want to see a mechanism to score the quality of the apps/ information sources by patient groups/patients to help me easily identify trusted and reliable sources of information sources/apps. This can become a "trusted by patients seal" . This is a method hack (non - technical)
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